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Dear My Sister,
It has taken me a while to get here, but I am now ready to share with you what has
been my story. I hope your journey is not too painful, but with my words you may
find some comfort. Here goes……..
It's strange having that feeling you know something is wrong. Through doctors, more doctors and hospitals, finally a camera was put in my belly button & lower belly- as a result it was true, there was something wrong.
"You are not able to bear a child". "You will never have a period".
Being told at 16 is confusing. I don't want a child now, I'm too young. But being told you can't have something makes you want it more. It was like a whirlwind after that. I feel like my life completely changed. Growing up feeling like an alien or abnormal cause I was diagnosed with MRKH.
My poor mother told me the bad news as she wanted to rather than the doctors. I blamed her for years. She was the easiest to blame but I was so hurt. It's no ones fault but I couldn't understand how or why. I am a firm believer that everything happens for a reason but what reason to be diagnosed with this condition, this sadness?
Time is a great healer. You look back and those years look like a blur even though you remember every last detail. I put off going back to the hospital for years, never dilated as I couldn't deal with it. Time passed & I took the step of returning to my gynaecologist who in shock realised I was sexually active & didn't need any further work/ dilation. She encouraged me to look online about MRKH and share my story.
Fortunately after joining groups online & researching it more, I found out I'm not alone. It was so relieving. There is even ladies in Ireland with MRKH. It is so comforting to know that they understand, support and guide you as best they can. You are not alone, you are not an alien, you are amazing to be dealing with such a condition.
As I mentioned earlier, I believe everything happens for a reason and I always knew I would find my reason for having MRKH. I am currently engaged to a wonderful man who has two kids of his own. I believe fate brought us together and even though it's still early stages whether we go ahead and start the process if we want a child of our own, who knows. But I believe it has made me stronger as a person and helped me along my journey with MRKH.
Your Sister Katie,