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Ambassador | Western Australia
My name is Kelsey. I am 27 years old. I have MRKH Syndrome. I am an ambassador for the Sisters for Love MRKH Foundation and I tell my story to help bring support to others and awareness of MRKH.
When I was diagnosed with MRKH at the age of 16, I had no idea that I was about to embark on one of the most emotionally challenging journeys of my life. I initially didn't understand what this condition was or the full impact it would have on my life. At such a young age, my first concern was how am I going to cover up that I don’t get periods . The idea of not being able to have a family was one of the last concerns I had at the time. I immediately buried my head in the sand, not wanting to talk to my family or friends, preferring to deal with my emotions alone and in silence. However, with the support of my wonderful family, the doctors, the nurses and my MRKH mentor I was able to overcome most of my fears and face my diagnosis head on.
The thing about MRKH Syndrome is that it can be cruel. Its a condition that makes you feel ashamed and embarrassed. At points I found myself struggling to identify who I was. It is such a taboo subject that you find yourself suppressing your emotions, not wanting to talk about it for fear of having to explain what MRKH is and deal with the potentially awkward reactions. It also doesn’t ever go away, popping its head up at different stages of life and usually when you least expect it.
However through these struggles, I am proud to say that I have come so far and that there is a light at the end of the tunnel. I finished a uni degree, landed my dream job and moved to Perth from Newcastle, NSW. I now feel strong, prouder and more determined than ever. I also have the most incredible husband who supports me 110% and accepts every one of my flaws including my MRKH. Together we are optimistic about what the future holds for us.
I view writing my story down on paper as my form of coming out with MRKH. I won’t deny that getting to this point hasn’t been easy – it has been one mighty struggle and I have almost got cold feet. However, I hope that by verbalising my journey I will help other women to no longer feel alone in their journey, to know that there are people out there who understand and are here to he lp. I now realise that I am the person I am today because of MRKH and there honestly isn’t a thing I would change. I hope that all women with MRKH can one day share this view of themselves too.
Becoming an Ambassador for the Sisters For Love Foundation is incredibly exciting and the foundation presents many new opportunities for women with MRKH Syndrome. I know that together we can achieve great things here in Australia by creating awareness of not only the condition itself but the impact it has on the lives of women and how we can help them through this. I cannot wait to see what the future holds and be a part of it.