Sisters

For Love

MRKH

Foundation

Jaqi Quinlan

 

My name is Jaqi Quinlan, I am an artist, designer, entrepreneur, mother and I have MRKH. I was diagnosed with MRKH almost 17 years ago, shattering my whole world as all I ever wanted to be was a mum, just like my mum. I never knew how strong I was until being strong was the only choice I had. A diagnosis of a different kind; a chronic form of arthritis, lead me further on an emotional roller coaster through denial and depression.


Uncertainty took me from one job to another, from a night filler to a graphic designer, a real estate agent to a ski instructor across the other side of the world! It was a very similar pattern in my love life. I finally found my soul mate, my true love, my now amazing husband.  And my everlasting longing to become a mum took me on a journey through surrogacy that endured many years of turmoil, frustration, devastation, to eventually ecstatic elation when my whole paradigm shifted the day my miracle entered this world – so pure, so precious, astonishingly perfect. ​ Having her two 'angel' brothers keeping her safe, our miracle was definitely meant for big things in this world.


I was slowly realizing that the struggle I was in today was developing the strength I needed for tomorrow. Meeting the ever so beautiful and inspiring Ally has lead me to join forces and move forward empowering women to be seen, heard and supported indefinitely through this journey called life. My intention as a Big Sister is to try and show our sisterhood that hope is out there, that nothing is too big to overcome, and if you have faith then anything is possible. 

In addition to co-founding the Sisters for Love MRKH Foundation, I am one of four co-founders of Global MRKH, which is the first consortium formed to improve the health and wellbeing for all who are touched by MRKH. ​In addition to this, I am the Vice-President of the MRKH Support Group Committee alongside a number of members, including key executive representatives with The Royal Hospital for Women, Sydney established in March 2015. 

Sisters in Silence. Sisters in Noise. Sisters for Love.

Jaqi Quinlan and Ally Hensley

Ally Hensley

 

My name is Ally Hensley. I am an English girl living in Australia and was diagnosed with MRKH in 1997. I love yoga, writing and swimming at Bondi Beach whenever I can, whilst attempting to learn who I am in this big, wide world. I thrive on knowing that there is a way of making the world a smaller place for women with MRKH. ​​


Through my search for self-acceptance and a desire to meet women ‘just like me’, I discovered a need greater than my own, a need to perhaps do my bit-  to use this incredible empowerment I have found over the years and start talking aloud to those who are willing to listen, and likewise, to those who want to be heard. To provide support and awareness through both online and face-to-face mediums, whilst providing accurate and understandable medical information, endorsed by a partnered medical community, is a goal which remains close to my heart.


​​​​It occurred to me, whilst writing this bit for ‘about me’, that it is entirely possible that I could have taken the same bus with you, or bought a coffee alongside you in a café, I may have even shared your dreams. So easily unidentified, though profoundly similar.  I know the sadness and shame you may feel and I know the desire to walk away from a lonely life to one with filled with empowerment and simplicity. Perhaps you are a woman who can offer wisdom where friendships can form. The potential for change is endless. In January 2014, the Sisters for Love, MRKH Foundation was launched.


In addition to co-creating the Sisters for Love MRKH Foundation, I am also the co-founder of Global MRKH, the first consortium formed to improve the health and well-being for all who are touched by MRKH. Global MRKH is an international collective of Health Care Specialists, researchers and advocacy groups dedicated in improving patient care, biomedical research and understanding the psycho-social needs of affected individuals and family members. ​In addition to this, I am the President of the MRKH Support Group Committee alongside a number of members, including key executive representatives with The Royal Hospital for Women, Sydney, established in March 2015. My most recent passion project, The Happy V, co-created with good friend Kristy, is a place which explores sex and sexuality in a unique way.  What does the V stand for?  Well vagina and vulva of course.  And the happy bit?  Happiness is a state of mind, no matter how you were born, everyone can have a happy and fulfilling sense of sexual well-being. Thus, The Happy V. 


In August 2017, I was appointed as Global Patient Advocate, joining a team of experts at the Australian Uterus Transplant and Research Centre, acting as an advocate for choice and supporting the ongoing research efforts in assisted fertility developments, governed by the best interests of those with Mayer-Rokitansky-Kauster-Hauser Syndrome.  I thrive on exploring a new era of making the taboo less taboo and if you haven't heard from me yet - you probably will soon! 


​Sisters in Silence. Sisters in Noise. Sisters for Love.

The Founders 

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